Resource Links & Updates

Links for Resources

Additional information about these sites is found in Appendix A

AARP Benefits QuickLINK: http://www.benefitscheckup.org/index.cfm?partner_id=22

AARP Caregiving information: www.aarp.org/family/caregiving/

Advance Directive forms: http://www.caringinfo.org/stateaddownload

The ALS Association: www.alsa.org

Alzheimer’s Association: www.alz.org

American Cancer Society: www.cancer.org

American Heart Association: www.americanheart.org

American Lung Association: www.lungusa.org

American Stroke Association: www.strokeassociation.org

Area on Aging/Aging & Disability Services locator: www.eldercare.gov

Benefits Check-Up www.BenefitsCheckUp.org

Canadian Hospice & Palliative Care Association: www.CHPCA.net

Caring Bridge: www.caringbridge.org

Caring for Your Parents: The Complete AARP Guide by Hugh Delehanty & Elinor Ginzler: www.aarpmagazine.org/books/books_caring.html

Faith in Action volunteer network: www.FIANationalNetwork.org

Family Caregiver Alliance: www.caregiver.org

Hard Choices for Loving People, by Hank Dunn: www.HardChoices.com.

Help the Hospices, About Hospice Care: www.helpthehospices.org.uk/about-hospice-care/

Help the Hospices, Care and Support for Carers: www.helpthehospices.org.uk/about-hospice-care/help-and-support-for-carers/

Help the Hospices, Financial Benefits for Carers: http://www.helpthehospices.org.uk/about-hospice-care/help-and-support-for-carers/money-matters/benefits

Hospice Net: www.HospiceNet.org

Locating Hospices outside the US, Canada or UK: www.helpthehospices.org.uk/about-hospice-care/international/find-an-overseas-service

Lotsa Helping Hands: www.LotsaHelpingHands.com

Macmillan Cancer Support: www.CancerLink.Org

Medicare Nursing Home Compare

National Alliance for Caregiving: www.Caregiving.org.

National Alliance for Caregiving, Resources for Caregivers: www.caregiving.org/resources/

National Alliance for Caregiving, Family Resource Connection: web.raffa.com/nac/axa/

National Council on Aging Benefits Check-up: www.BenefitsCheckUp.org

National Hospice & Palliative Care Organization: www.CaringInfo.org

National Kidney Foundation: www.kidney.org

Palliative care information: www.PalliativeDoctors.org and www.GetPalliativeCare.org

Pet Adoption: www.PetFinder.com

Skype: www.Skype.com

You Send It: www.YouSendIt.com

Additional Resources You May Find Helpful

About.Com: Hospice & Palliative Care Website and Blog provides information on a range of end of life issues, with content provided by a hospice RN. http://dying.about.com/

The Checkout Line serves as an online, daily advice column for end of life issues. Visitors can submit questions on a range of end of life issues. Answers are researched by a veteran journalist and long-time hospice volunteer. www.thecheckoutline.org/

Dying Well provides information on a range of end of life issues, with content provided by a hospice & palliative care physician. www.dyingwell.org/

Hospice & Palliative Nurses Association provides free, downloadable information for about a variety of topics, in English and Spanish languages. http://www.hpna.org/DisplayPage.aspx?Title=Patient/Family%20Teaching%20Sheets

KS Pope provides an extensive list of resources and websites related to caregiving and end of life issues http://kspope.com/hospices/index.php

Pet Peace of Mind is a program that offers training and support to hospices to enable families to keep pets at home with them, throughout their end of life journey. www.banfieldcharitabletrust.org/Pet_Peace_Of_Mind

Please send your suggestions for additional resource links to us.